Philips Lifeline Communicator

by Admin 20. January 2010 06:55

You may have seen on TV an ad for Philips Lifeline Communicator.  It is essentially a $1 per day small device that a homebound person wears like a chain around their neck.  If there is an emergency, a button is pressed and Philips based out of Massachusetts is notified and responders are sent. Philips will attempt to talk to the person via a phone call through the senior friendly phone that is provided or through an additional speaker box.

Sometimes seniors or the disabled might find it difficult to use a cell phone or forget to carry it with them. If your ward has a mobility issue than a service like the one Philips provides to 700,000 people makes sense and is not so costly.  Philips can be contacted at 1-800-543-3546 if you need additional information.

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Good Advice for Visiting Loved Ones With Dementia.

by Admin 28. December 2009 03:58

I read this great article on Christmas eve in the Columbus Dispatch

THE COLUMBUS DISPATCH

This season of gathering, reminiscing and tradition also can bring sadness and uncertainty for those who love someone with Alzheimer's disease or some other form of dementia.

To make the most of holiday visits, caregivers and other relatives and friends should accept what can't be fixed and learn to offer support and bring joy to those affected by the disease, experts say.

During visits, "you have to learn to suppress any feelings that you have, put a big smile on your face and try to be as cheerful as you can," said Dr. Leopold Liss, medical director of the Columbus Alzheimer Care Center.

One in 10 Americans 65 and older suffers with dementia. It affects almost half of those 85 or older, according to the Alzheimer's Foundation of America. Alzheimer's disease is the most common form of dementia.

People are prone to over-explaining reality when an evasive, yet truthful, answer would be best, Liss said.

Laralyn Sasaki, who lives in the Short North, said that her visits with her grandmother, who had dementia, improved significantly when she learned to answer questions that way.

"When she asked where her husband was, who had passed away several years before, we'd say, 'You know, we haven't seen him today,'  " said Sasaki, whose grandmother, Thelma Townsend, died three years ago at 97.

Learning to avoid correcting the person with dementia is essential, said Mari Dannhauer, program director at the Alzheimer's Association of Central Ohio.

"We tell caregivers they've really won their last argument, because the person with dementia is not able to be rational in our world so, we kind of have to jump into their world."

Insisting that someone remember your name is useless and potentially damaging, Liss said.

"You have to respect the fact that this is their reality. Don't try to jerk them out of it because it might have negative results," Liss said.

Helping also can mean avoiding things that create frustration.

Sasaki said she and her mother learned to tune into nature shows or old, happy movies rather than channels featuring current events and political candidates her grandmother didn't recognize.

Her advice to others dealing with dementia is to visit loved ones rather than staying away out of fear of awkwardness or tension.

Sasaki was part of a team of people who volunteered their time recently to produce DVDs and CDs that feature Liss and offer caregivers advice.

At the holidays, caregivers should know that things don't have to be perfect, nor do they have to be the same as every other year, Dannhauer said. Changing a home-cooked holiday party into a potluck can ease anxiety. And having family members visit in shifts rather than all at once can help, Dannhauer said.

She recommends involving the person with Alzheimer's disease in activities such as singing carols or wrapping presents rather than assuming that they can't or don't want to participate. Interacting with children can be uplifting, and smiles and embraces are almost always a good thing, Liss said.

For information about central Ohio support groups and other resources for friends and family members of someone who has Alzheimer's, call 1-800-272-3900 or visit www.alz.org/centralohio/.

For information about The Art of Caring DVDs, go to www.theartofcaring.net or call 614-294-2779.

mcrane@dispatch.com

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Keeping Track of Your On-Site Visits

by Admin 17. December 2009 03:49

One of the most important jobs of a guardian is to keep track of the times you visited your ward at a nursing or group home if that is where you find them. Just last night I was visiting my own mother at a rehab facility. Now she seems to be completely competent at 82, but I can see the difference in treatment because the staff knows I am a lawyer and involved in the guardianship business and most importantly am keeping track of what I am seeing.  My mom has complained about not getting her medications at the right times and about rude treatment by an aide.  Her roommate confirmed the complaints. It is remarkable how some staff that work at nursing homes do not seem to like their jobs and treat all patients like unruly children.

Well, they should be listing the complaints they receive directly from the patients on their charts. They do not! It is information that might show a pattern of neglect and therefore better not to list.  But the fear of litigation is a powerful deterrent and if you demand that your complaints on behalf of your ward be documented and that you are recording the same.  Your client will get better care.

My Mom hit the nurse’s button and was not supposed to use the rest room without assistance. The response took more than 20 minutes. Now she is on a diuretic and it is hard to wait. The aide finally showed up and said, well just do it in your bed. You have to be kidding! She wasn't and believe me these understaffed and undertrained statements are coming out everyday to our wards who find themselves relying on the care of others.  Let the facility know up front that you will document the issue in your own case notes. Our software allows the guardian to keep track of case notes and are searchable. Contemporaneous notes are admissible as business records if litigation is needed in the future. We have to put the pressure on the residential care-givers to keep them honest and accountable.  Vary the times you come to visit so your schedule is not predictable.  If they know you show only at 4 P.M. then maybe they will not bathe your ward until that time.

Do not be shy about letting the residential care facility know that your job is as an advocate on behalf of your ward.  Let them know that you keep electronic records even if they do not.

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Let Grandma Facebook

by Admin 23. November 2009 03:52

Three years ago at this time Facebook had 12 million users. At the beginning of 2009 it had 150 million users. As we hit December of 2009 Facebook has 300 million users.  The fastest growing demographic is users over 35.

 

I say put grandma and grandpa on Facebook.  We need to teach them the skills and create applications for ease of use. At first they might not understand what a “Wall” might be and perplexed if someone asks them to accept chickens for their farm.  But the one thing Facebook can do for seniors is allow them to socialize.  There is nothing more important in maintaining a healthy lifestyle than continuing to socialize.  Too many of our wards, our parents, aunts and uncles become isolated by physical immobility and the loss of friends to death and the movement of families from home communities.

 

The lack of socialization can slowly give way to earlier onset of dementia and Alzheimer’s. Studies have shown that the healthiest seniors are those that continue to lead busy and interacted lives.  It’s not on Facebook yet but we can create social groups built around military units or ships or graduating nursing classes from the 40’s and 50’s.

 

A welcome expenditure is to buy your mom a laptop and set her up on Facebook, Also if the grandkids accept her as a friend then maybe they will be less likely to post compromising pictures of themselves that they would regret later.

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Guardian convicted of stealing...

by Admin 19. October 2009 04:04

Associated Press

 

TWIN FALLS, Idaho -- A former community guardian in Twin Falls has been convicted of stealing more than $6,000 from a 93-year-old woman in her care who is suffering with dementia.

Forty-eight-year-old Cindy Laws was charged in March with felony abuse or neglect of a vulnerable adult. She entered an Alford Plea this week, which means she acknowledged there is enough evidence to convict her even though she didn't plead guilty.

The Times-News reports the plea is part of an agreement reached with prosecutors. The charge carries a maximum penalty of 10 years in prison and fines up to $20,000.

She is scheduled to be sentenced Sept. 28.

Laws has also been accused in a separate case of stealing $351 from another client.

Read The Story Here

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Long-term care needs to be part of the debate!

by Admin 7. September 2009 11:12
10 million Americans need assistance in order to maintain the best possible quality of life. It is sometimes the smallest act of washing clothes or getting in and out of the shower, which are most difficult. Guardians know these numbers in a very intimate way. They know that their wards are often impoverished because of spending down to meet Medicaid requirements. Nursing home care is tremendously expensive and can average close to $75,000 per year. The Medicaid line item is busting budgets of states across the country. It is about 25% of total expenditures. Medicaid is the largest provider of funds to pay for long-term services for the frail and elderly. It was meant to help poor mothers and their children.. With health care reform on the table, it would be significant if Congress and the Obama administration included long-term health care into the fix. $250 billion is spent annually on long-term services. Moreover, caregivers who are relatives, without considering the emotional and financial cost experienced by these people, provide most of the assistance. My mother for example has Parkinson’s. There is no acute treatment for many common diseases of the elderly, so the cost is up to them. If she had an accident, it would be covered. And accidents with the frail are what usually drives them into a costly acute care facility. Her life would be measurably improved if she were able to afford the services of someone to stop in and help her out. Now, it is the kindness of neighbors and a son or daughter from out of town that shoulder the effort. Three out of Four Americans will need the services of long-term care at some point in their lives. Most of us have not purchased a policy for long-term care and if you are sick or old, forget about it. The late Senator Kennedy offered language that would have current employees paying about $5 per paycheck to buy into insurance. This would reduce the current state cost by at least $50 Billion per year. Others have advocated an expansion of Medicare. Whatever the solution, it ought to be added as a critical component of the health reform act. As guardians, our responsibility to our wards means that we should let our representatives know how critical and costly this issue has become. Making sure they are all covered is in the best interest of our nation.

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Is That A Size 18 Dress You are Wearing?

by dengler 23. August 2009 14:27
Last week I saw an old friend who was wearing the stress of the morning on her face. Now my friend is a well-educated and savvy professional who rarely finds herself flummoxed. However, take this 60-year-old woman and have her Alzheimer’s diagnosed mother ask her the same question everyday about her dress size and she gets reduced to a 12 year old school girl remembering a disapproving mother. It is remarkable how much a parent who is ill from dementia or Alzheimer’s can cause such severe stress to the caregiver. All of the family fault lines are exposed. The siblings who live out of town can make a call and be seen as the good child and the parent will let you know it. Once the decision to remove from the home is made, the parent will hold the decision maker responsible. I asked her if her mother knew what day it was and she responded that she knew because a new day was every morning when she stopped at her care home before going to work. It takes true love and a sense of responsibility to shoulder this task. Moreover, the family needs to understand the emotional and financial toll it takes on the family. It is exactly this toll that goes in to our change basket and adds up as we develop resentments for the other family members who we believe get off easy and do not understand the commitment. In advance if possible or with the help of a neutral party like a family counselor or attorney experienced in elder law issues, a family should call for a retreat to strategize the needs for an aging parent. We come together to celebrate births and we should come together to celebrate and plan for the remaining years of our parents. There are many issues that need discussed, like the cost of care and what documents are necessary to provide for Medicaid eligibility. The first meeting should be without the parent unless they are clearly competent and understand that the goal of the meeting is to plan for an uncertain future. All of the baggage needs to be checked at the door of the meeting room and fully examined for explosives (figuratively). The professional can help with the communication tools that seem to be so elusive when dealing with family. The goal for all needs to be focused. I like to start with a positive reinforcement of the 3 most beautiful things we can say about our parent. We then need to have everyone list what 3 goals they would like to take away from the retreat. In advance an assessment of finances is prepared and an understanding of the condition faced by the parent. Once again it does not seem to matter how many degrees a person has because when it comes to dealing with a person with Alzheimer’s, rationality goes out the window. When your 86 year old mother says “your butt looks big”, we lose perspective. That is why it is important to create a situation where the family can seek agreement with each other, understanding, and appreciation for the caregiver at the bedside. By the way my friend is half of a size 18 dress.

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WHO YOU CALLING SWEETIE

by dengler 13. August 2009 11:33

Have you ever taken an aged client or your parent and the doctor or nurse refers them as sweetie or sugar or some other term of endearment?  I know the doctor is trying to show compassion and connection but the opposite often occurs.  It is a way of saying I don’t take you all that seriously and need to address you in a patronizing way, Seniors get offended by health care professionals who treat them like children.  A male doctor would not refer to a 36 year old female client as sweetie and he should not refer to an 83 year old female any differently.  It is the subtle use of words that convey a relationship that is not level.  The people we bring to their doctors might be frail and fearful but most are of sound mind and understand that they are being talked over.

 

I am suggesting to all of the well intentioned professional to refer to the elderly in a more respectful manner as Mr., or Mrs. or by their first name if they have a solid relationship.  Never ask the son in the room if the Mom is acting confused when the Mom is sitting right there. It feeds into their sense of hopelessness that their guardian or child is the only one that can be trusted with medical questions. There may be a time for such questions but they should be done outside of the presence of the patient.

 

 

You might order your eggs at a roadside diner and call the waitress sweetie, but you should never call an aged patient sweetie. They know as much about their condition as the doctor does and has seen more, like the ravages of war, life raising a family, and making tough decisions at work.  Always err on the side of treating our elders with respect.

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Our Wards and Divorce

by dengler 30. June 2009 04:28

Having practiced law in the area of Domestic Relations I can attest that the divorce rate among the elderly is increasing.  Divorce lawyers are seeing couples divorce after 30 years of marriage.  In the past year I have seen divorce after 48 years and one after 39.  In each instance the attorney and the family and possibly the guardian need to be aware of the effects of early dementia or early onset Alzheimer's as causes for the break-up.  It is popular for comedians to blame Viagra and it has come into play but most often it is the change in personalities that comes with the aging process that leads life partners to become unstable. 

 

I actually filed a guardianship action  that was thwarted by the wife when she hired an attorney who complained for divorce.  The divorce action trumped the guardianship sought by the husband and the very adult children each took sides. The reality was a bitter fight disposing of a lifetime of assets.  Throughout the process the mental illness of the wife was present but divorce courts are reluctant to pursue a request for a competency exam.  The facts must be extreme to derail a divorce by raising mental illness because of a stroke or dementia.

 

The other aspect of divorce for the guardian is that now guardians will see more and more of their wards come form a divorced background. Divorced rates plateaued in the 1980's and now linger just below 50 % but the entire social network is disrupted by  a divorce that might have occurred 20 or 30 years earlier.  Studies have shown that the relationship between children and their parents are effected by divorce. It is particularly true for father and their children.  So once where coresidence or in kind services from a child to an elderly in need parent might be the norm; in families of divorce the relationships that were frayed decades ago have a real-time impact for the guardian today.  It is one of the reasons guardins will note that the care of elderly falls into the care of strangers because the relationships that were relied upon in the past may have  been fractured by divorce.

 

It is important to understand the effect upon the family from a divorce that may have happened years earlier in understanding why the person needs help now.  And when confonted by a potential divorce in the present it is important that the professional understand that the dynamics leading to the dispute may have more to do with health.

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Why Guardians Matter

by dengler 1. June 2009 07:18

At eGuardianship.com our clients are people that take care of other people. There is no higher calling. The genisis of this professsion can be found in the founding principle of every religion. And as our world moves us faster and faster and with greater and greater distance between us - technology can be part of the fabric that holds us together. It can be the means of communnication that allows us to make sure our mother is getting the best care or that a verteran is sure to have a home. Reporting on visits or reporting to a court are all done with binary precision.

I have had this debate over many years with friends. Some believe that as the world ages we grow apart. They see the world as tribal warfare, disconnected crimes and people simply tuned out. I believe the opposite. If we can find more common languages, our world shrinks. Math is universal. It is the basis for technology. It allows the foundation of the explosion of social networking. It allows a guardian in Alaska to check the medical records of her ward in a flash who was treated in Texas. It allows this blog. Technology is an unifying force.

And the people who are engaged in the most noble of professions will use it to bring their care closer to those who need it.

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